I am pleased to announce we now have a European Mastocytosis Website www.mastocytosis.eu While at the Masto Conference in Toledo last year myself and other European Support Group Leaders got together and decided on this great venture taking mastocytosis information to other European countries some of which have little in the way of information or Support Groups or individual contact persons. At Toledo, Andrea from Germany, Claude from Belgium, Brigit from the Netherlands, and myself got together and we have worked on this for almost a year. We have 16 European countries involved, Austria, Belgium, Czech, Denmark, France, Germany, Greece, italy, Netherlands, Norway, Poland, Portugal, Slovenia, Spain, Sweden and United Kingdom. Can you imagine the amount of work as every country speaks a different language. We decided to have the same masto information in each countries language and each country translated the information into their own language. We have either a Support Group or individual person's contact details listed for each country. What a help this will be to people where there is little support for mastocytosis and it will help people not to feel so alone with the condition. We have 8 European Support Groups and 8 European Individual persons listed. Imagine the difference this will make to people from all over Europe. We are spreading the masto word and in time the more who know about it and the more doctors that become interested can only benefit every single one of us with mastocytosis/mast cell diseases. Andrea, Claude and I have worked for almost a year to bring this to fruition. Hopefully it will help people from all over Europe with mastocytosis.
Our grateful thanks go to Bethany Aspinall from our UK Support Group for building the website for us and very special thanks go to Andrea and Claude, for the hard word and dedication they have put into this wonderful venture.
Created February 26, 2010, in honor of Rare Disease Day, this online support group was created for communication specific to medical issues concerning mastocytosis and mast cell related diseases. It is open to all patients and caregivers. You must be a "member" of this group to read and post messages. More general communications should be addressed to the mastoCom list (below). Request membership using the link above.
Created February 26, 2010, in honor of Rare Disease Day, this online support group was created for general communication for patients and caregivers of mastocytosis and mast cell related diseases. You must be a "member" of this group to read and post messages. Request membership using the link above.
Created February 26, 2010, in honor of Rare Disease Day, this online support group was created for communicaiton specific to pediatric mastocytosis and mast cell related diseases. It is open to all patients and caregivers. You must be a "member" of this group to read and post messages. Request membership using the link above.
Subscribe to the Online TMS Support Yahoo Group list by filling in your E-mail address below, and select Join Now!
Ivo's masto lists [Web link] (This list has no legal connections with The Mastocytosis Society, Inc. These lists are not owned or operated by TMS. TMS does not monitor or moderate these lists. We do not accept any responsibility or liability for their content. TMS members can and do participate in these lists. Per Ivo, these lists will be terminated at the end of 2010.)
16th Annual Conference
October 21-24, 2010
Tucson, Arizona
(details
This Web site is intended to provide basic information about Mastocytosis
and Mast Cell-related disorders or diseases. Information contained herein
has been approved by the TMS Board of Directors only.
It is not intended to provide,
nor does it constitute, medical advice. Readers are warned against changing life activities
based on this information without first consulting a physician.
