Welcome!
Mast Cell Disorders are considered rare disorders by the National Organization for Rare Disorders. It is not known exactly how many people are affected by mast cell disorders, but in recent years it has become apparent that most, and possibly all, mast cell disorders are under recognized and under diagnosed. One part of the TMS mission is to educate physicians and other health care professionals about how to recognize, diagnose, and effectively treat mast cell disorders. Although there is currently no cure for any of the mast cell disorders, effective treatment protocols do exist for each type of mast cell disease, including aggressive disease and mast cell leukemia. Please note that we are available to any health care professional who would like assistance in determining which treatment would be most appropriate for their patient. The physicians on our Medical Advisory Board are very willing to assist you with this. For direct patient inquiries, please contact Chairman@tmsforacure.org and please write Patient Inquiry in the subject line. We will be happy to interface with members of our esteemed Medical Advisory Board on your behalf, and when indicated, put you in touch with one of them directly.
The Mastocytosis Society, Inc. also offers research grants periodically. Please check the website and The Mastocytosis Chronicles for further information about when Research Funding Proposals will be invited.
Please contact us if there is information that you require that is not available on this website, at webmaster@tmsforacure.org. It is our goal to give you the information that you need to care for all patients with mast cell disorders. |