Other US Mastocytosis Web Sites
- Mastokids (for parents of and children with mastocytosis
- Kansas Mastocytosis Support
- Oklahoma Mastocytosis Society
- Olive Clayson’s Mastocytosis Web Page
Mastocytosis Web Sites/Support Outside the US
- The UK Mastocytosis Support Group
- Canada Mastocytosis Support Forum
- Masto Chat Line in Dutch (Owner: Ivo Bouwmans)*
- Mastozytose Internet Selbsthilfegruppe (Andrea König)
- Mastozytose e.v. (German website about Mastocytosis)
- European Competence Network on Mastocytosis (ECNM)
- Urticaria Pigmentosa — DermNet NZ
Mastocytosis Medical/Researcher Web Sites/Information
- Overview of Mastocytosis (National Institute of Allergy and Infectious Diseases, NIH)
- U-M Mastocytosis Research (Dr. Cem Akin)
- Molecular Immunopharmacology & Drug Discovery Laboratory (Dr. Theoharides’ Web Site)
- Myeloproliferative Diseases (Dr. Srdan Verstovsek’s Web Site)
E-mail Lists/Forums/Chats Related to Mast Cell Disease
- Online TMS Support Group — Yahoo Health Group (Owner: Cindra Carey on behalf of TMS)
- Medical Question/ Answer Forum MASTO LIST (Owner: Ivo Bouwmans)*
- General Chat Line MASTO-COM (Owner: Ivo Bouwmans)*
- MASTO-CHILD Chat Line for pediatric mastocytosis (Owner: Ivo Bouwmans)*
- Idiopathic Anaphylaxis Support Group — Yahoo Health Group (Owner: Candace Van Auken)
- Masto — Mastocytosis — Yahoo Health Group (Owner: Jackie Vaughan)
- Mastocytosis Support Group — Yahoo Health Group
Books by Mastocytosis Patients
- www.frannierose.com (Frannie Rose)
Blogs by Mastocytosis Patients
Social Security/ Disability Information
Miscellaneous Links
- How to Use an EpiPen (Epinephrine) Auto-Injector
- MedicAlert
- National Organization for Rare Disorders (NORD)
- Medline Plus — National Institute of Health (NIH)
- US National Library of Medicine — National Institute of Health (NIH)
- International Chronic Urticaria Society (ICUS)
* Our deep gratitude to Ivo for creating and maintaining these forums & chats.