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A rare disease in search of a cure

The Mastocytosis Society is a 501(c)(3) non-profit organization dedicated to helping patients, caregivers and health care professionals understand mast cell disorders — what they are, where to get treatment for them, and the impact they have on patient’s lives.

NEWS

2008 TMS Conference Planning in Full Swing

Hilton Minneapolis/Bloomington Hotel

(June 21, 2009) Conference Chair Mishele Cunningham reports that members of the Minnesota and North Central Support groups are hard at work putting together a terrific program for this fall's TMS gathering. More

Disability Committee Update

(June 20, 2008) Still recovering from a major computer meltdown, Patti Hibb's e-mail address has changed. More

Novartis trial for PKC412

Novartis logo

(April 23, 2008) We received a call today from Leslie Fields, the Patient Advocate from Novartis, who is working to coordinate the opening of the study for PKC412 (Midostaurin), a new drug for aggressive mastocytosis. We have some details, although not all of them, but we wanted to share what we know for those of you who are anxiously waiting for information. More


GIOVANNI LAMANNA CD

Photograph of Giovanni Lamanna, songwriter and performer, and his mother, Michelle, who has mastocytosis. You can buy a copy of Giovanni’s tribute to his Mom and everybody with mast cell diseases through E-bay or from TMS!

FEATURED LINKS

» TMS Partners with American Medical ID — More

» Dr. Cem Akin Named Top Doc — More

» Seeking Children with Austism — More

» Support TMS: Become a Member! — More


Mastocytosis and Mast Cell Activation Disorders Defined

Research

  • Stay up-to-date on the latest mast cell-related research.

Find Other Patients & Caregivers

BOARD NEWS

Register for Minnesota!

(June 19, 2008, Corrected 6/27/08) Use this form to register by mail for the 2008 TMS Annual Conference, which will be held this year in West Bloomington, Minnesota, hosted by the Minnesota and North Central Support Groups.

If you register before September 1, 2008, you will automatically be entered in the Early Bird Drawing for free admission to this year's (2008 Minnesota) conference. More


SUPPORT GROUP MEETINGS

Colorado : Sat., Sept. 6, 2008
Chester, U.K. : Sat., Nov. 1, 2008

Find a Support Group...


BOARD NEWS

AAAAI Mast Cell Task Force Meets

American Academy of Allergy Asthma and Immunology logo

(April 23, 2008) I was honored to be the TMS representative to the Task Force Meeting on Mast Cell Disorders at the American Academy of Allergy, Asthma and Immunology Meeting in Philadelphia, Pennsylvania, on Saturday, March 15, 2008.

The first topic discussed was the European Competency Network for Mastocytosis (ECNM), which met in Paris in November and is interested in collaborating on a meeting to revise the existing criteria for Systemic Mastocytosis within the next year or two. More


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© 2006–2008 The Mastocytosis Society, Inc.
Page last updated: June 27, 2008