From the TMS Board > Board News > 2007 Board News

2007 Board News

TMS RECEIVES 2007 AAAAI PROJECT AWARD

(November 25, 2007) TMS Vice Chair Val Slee today received word that The Mastocytosis Society (TMS) has been named a recipient of the 2007 American Academy of Allergy Asthma and Immunology (AAAAI) Lay Organization Project Award in the amount of fifteen thousand dollars (US $15,000.00). MORE

2007 ELECTION RESULTS

(October 11, 2007) The Mastocytosis Society Board announces the results of 2007 election: Len Levenda was elected as Special Projects Chair. Congratulations, Len!

BOARD APPROVES 2007 BYLAWS REVISION

(September 21, 2007) The Board of Directors has approved the revised bylaws on September 21, 2007.

BOARD ANNOUNCES 2007 GRANTS RECEIVED

(Sept. 13, 2007) The TMS Board of Directors announces that it has applied for, and been awarded, three grants to be used for education, awareness, and conference expenses!

Azur Pharma, makers of Gastrocrom, were the first to renew our annual educational grant, and this year they increased the amount to $4,500.00 in response to information supplied in the application about new TMS initiatives.

Genentech, maker of Xolair, gave us a $2,000.00 grant specifically to use for the 2007 Annual Conference.

Dey, Inc., maker of EpiPens and Zyflo (in conjunction with Critical Therapeutics) awarded us a $5,000.00 educational/conference grant.

Grant submissions were prepared by Valerie M. Slee and J.J Boyle with help from Emily Menard. There are still a few grant submissions pending. We are delighted with the assistance and support provided by these pharmaceutical companies that make the medications that we depend on! We are already looking forward to ways to make these funds do the most good for our members!

TMS BOARD APPOINTS NEW SECRETARY

(June 21, 2007) TMS has a new Secretary! Lisa Kenny has been appointed the new TMS secretary, as a non-board position. Lisa can be reached at lkenny@tmsforacure.org.

Lisa volunteered her time at the AAAAI conference in San Diego this past Februrary. In joining her search for a cure, Lisa made the trip from Long Island, New York with her her family. Both Lisa and her family dedicated much of their time during their stay to assist TMS. Lisa is eagerly looking forward to taking on this new role. One of her goals is to form a New York support group.

Len Levenda, who previously held the Secretary position, will resume his previous responsibilities as Special Projects chair. One of his many projects will begin working on the multimedia packaging of research material for the conference, working alongside with the Research Committee.

Please join us in welcoming Lisa to TMS and to Len for resuming his position as Special Projects Chair.

BYLAWS UPDATE

(June 19, 2007) The bylaws are currently being actively revised with weekly meetings, using the material from the member bylaw committee and the board suggestions as a working framework. One amendment has already been voted in as of June 6, 2007: All voting for elections will be done by mail-in ballot only.

REBATE ON GASTROCROM

(June 2, 2007) Azur Pharma is pleased to announce a partnership with Galloway Pharmacy, a specialty pharmacy set up to assist Gastrocrom patients. Patients will be able to fill their prescriptions through this mail order service, and reduce their out of pocket expenses by up to $25 per prescription ...MORE

TMS NAMED AAAAI LAY ORGANIZATION

(March 5, 2007) The Mastocytosis Society has just been informed that we have been approved to be an official Lay Organization of the American Academy of Allergy, Asthma, and Immunology (AAAAI)! This is a tremendous honor, and one that we have been working towards for the past eighteen months.... MORE

AAAAI REPORT FROM VICE CHAIR

(March 5, 2007) It has been five days since I returned from the 2007 Annual Meeting of the American Academy of Allergy Asthma and Immunology (AAAAI), and I am finally feeling human again! These cross-country trips are really grueling, but oh-so-worth it! I am so encouraged by all the interest in mast cell diseases.... MORE

MEDICAL ADVISORY BOARD UPDATE

(February 24, 2007) Dr. Dean Metcalfe has served on our Medical Advisory Board for the past few years, and has now advised us that effective February 28, 2007. He is resigning from his official position on the board “due to time constraints and revised regulations governing such participation.” MORE

NEW INTERIM WEB SITE COMMITTEE

(February 24, 2007) Karen Curtiss has formally resigned as TMS Webmaster. She has served in this capacity since proactively developing the web site in 2004. An interim web site committee will be taking over the management of the web site while other options are explored. Members of this committe include ... MORE