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DR. NORTON GREENBERGER JOINS TMS MEDICAL ADVISORY BOARD

(June 27, 2008) It is with great pleasure that the Board of Directors of the Mastocytosis Society (TMS) announces that Dr. Norton J. Greenberger, of Brigham and Women’s Hospital, Boston, has accepted our invitation to join our Medical Advisory Board. MORE

ANNOUNCING ACCOMMODATIONS FOR 2008 TMS CONFERENCE IN MINNESOTA

(May 8, 2008) Planning is proceeding for this year's TMS Annual Conference, which will be held Thursday, October 16, through Sunday, October 19, 2008, at the Hilton Minneapolis/Bloomington Hotel, which is located at 3900 American Boulevard in West Bloomington, Minnesota 55437. The hotel's telephone number is 952.893.9500. Reservations will be able to be made via the Web, and rooms will cost $99.00 per night. MORE

ANNOUNCING NOVARTIS TRIAL FOR PKC412 (MIDOSTAURIN), NEW DRUG FOR AGGRESSIVE MASTOCYTOSIS

(April 23, 2008) I received a call today from Leslie Fields, the Patient Advocate from Novartis, who is working to coordinate the opening of the study for PKC412 (Midostaurin). I have some details, although not all of them, but I wanted to share what I know for those of you who are anxiously waiting for information. She did not have the inclusion and exclusion criteria yet. MORE

SUMMARY OF THE AAAAI TASK FORCE ON MAST CELL DISORDERS MEETING

(Released April 23, 2008) I was honored to be the TMS representative to the Task Force Meeting on Mast Cell Disorders at the American Academy of Allergy, Asthma and Immunology Meeting in Philadelphia, Pennsylvania, on Saturday, March 15, 2008. MORE

TMS PARTNERS WITH AMERICAN MEDICAL ID

(April 4, 2008) It is with great pleasure that we announce a partnership between American Medical ID and The Mastocytosis Society. At the Annual Conference in Houston, Texas, American Medical ID was generous in supplying attendees with free USB flash drives on which to store their medical records. These flash drives can be attached to a key chain or carried in a purse or pocket. MORE

ANNOUNCING 2008 NOMINATING COMMITTEE

(March 29, 2008) It is with great excitement that TMS once again has a Nominating Committee in place. For the 2008 election year there are two positions to be filled and always a need for more help in our work. MORE

DR. CEM AKIN NAMED TOP DOC

(March 17, 2008) This happened last October, but we didn’t hear about it until now. It seems that Hour Detroit magazine put together a list of the Top Doctors in their metropolitan area, based on the results of 6,000 surveys sent to area doctors, nurses, and medical institutions. MORE

TMS DISABILITY COMMITTEE

(February 16, 2008) We are pleased to announce the formation of a Disability Committee, which can provide guidance for those applying for disability with a mast cell disorder. Please contact Disability Committee Chair, Patti Hibbs at hibel@msn.com.

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