spacer logo mastocytosis home about us contact
 
Donate Now!
spacer
Join TMS
 
Store
 
Support Groups
 
Calendar
 
Conferences
 
Fundraising
 
Pediatrics
 
Research
 
Walk-a-thons
 
spacer
 
Volunteer Board
 
Chronicles
 
Help TMS!
 
Google

Web Search
www.tmsforacure.org
 
spacer spacer spacer
Emergency Protocols (below) Clinical Trials (below)    
     
spacer spacer
spacer What is Mastocytosis?
   
  Mast cells are something that are produced naturally in every body, necessary to assist the body in fighting possible foreign threats to the system. (more about masto...)
   
  Pediatric Fact Sheet [PDF]
   
  Mastocytosis Questions & Answers [PDF]
   
   
spacer spacer
spacer TMS News
   
  Check out new items in the TMS store, including our new Together with Hope holiday cards and bookmarks (more)
   
 

Hope Card

Hope Card inside
(select images to view larger)

 

$15.00 (set of 10 + S/H)

Inside: Together with Hope

     
 
bookmark
(select images to view larger)
 

$5.00 (set of 5 + S/H)

paypal

     
   
 
Can you help? Do you have experience with graphics (Photoshop, etc.) or HTML? Please contact the Webmaster E-mail envelope to get involved!
   
  TMS Member, Lisa Sterling wrote a children's book, the proceeds of which, will go to benefit The Mastocytosis Society. (more)
   
  One of the speakers at the TMS conference made a comment that requires clarification. Please click here to read a letter from our Chair, Valerie M. Slee, and our physician specialists clarifiying that issue. Thank you. [PDF]
   
  During the physicians panel at the conference, the physicians in attendance agreed that all patients of mastocytosis or mast cell related diseases should get annual flu shots as should anyone with a chronic disease.
   
  The physicians in attendance also agreed that mast cell related patients should not be blood or organ donors due to the fact that this disease originates in the blood and it is unknown whether the disease could pass to the person receiving the blood transfusion.
   
  The 2010 TMS conference will be in Tucson (more)
   
   
 
spacer spacer
spacer Support Groups
   
 
  • find a support group in your area (more)
  • find a support meeting (more)
  • form a support group in your area (more)
  • check-out our new support groups
    calendar (more)
   
   
spacer spacer
spacer Medical Alert Information
   
 

Check out these sites and services:

Free Emergency Medical ID Wallet Card [Web], American Medical ID [Web], Identify Yourself - Universal Medical ID [Web], Lifeline [Web], MedicAlert® [Web], MedicTag (USB) [Web], Free Online Medical Registry [Web], Rescue Alert [Web]

   
   
spacer spacer
spacer Help Wanted
   
 

TMS Video on Mast Cell Activation Symptomatology TMS is actively seeking funding to translate the TMS video on MAst Cell activation Symptomatology into Spanish. Dr. Mariana Castells has asked that we translate the video as soon as possible. to that end, we have begun meeting with a translator, and asking for proposals for the project. We will be seeking grant funding to translate this, and other critical TMS literature for patients, caregivers and physicians, into Spanish. If you would like to contribute specifically to this endeavor, please send a check to "The Mastocytosis Society" and designate that it is for Spanish translation. In the future, we may be seeking funding to translate the DVD into other languages. Valerie M. Slee

   
   
spacer spacer
spacer Emergency & Surgery Protocols
   
 

Important information about anesthesia [PDF]

Dr. Castells Emergency Plan for Systemic Mastocytosis, Mast Cell Activation, and Anaphylaxis [PDF]

   
   
spacer spacer
spacer Clinical Trials
   
  Clinical Trials for Mastocytosis at MD Anderson Cancer Center in Houston, Texas. [PDF]
   
   
spacer spacer
spacer In the Media
   
  Boy with a rare disease on a mission.... (more)
   
  “I think it is very likely that this patient has systemic mastocytosis — I can not think of anything else that would account for this unusual presentation,” .... (more)
   
   
   

The Mastocytosis Society can benefit by your purchases through the folowing links:
Full Circle Exchange
Pampered Chef logo
Select "Shop Online"
then enter "Mastocytosis Society" as the Host

The Story of
Winny Ninny Poo Poo


Story of WInny Ninny Poo Poo
GoodSearch: You Search...We Give!
yourcause.com
(formerly mycause.com)
We Look to You — Giovanni Lamanna CD
iGive.com
Please also check out our Online Store!
Contact our Fundraising Chair with any questions or suggestions
     
   
Subscribe to OnlineTMSSupport

Powered by us.groups.yahoo.com

     
   
spacer spacer spacer
Full Circle Exchange Mastocytosis banner