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A rare disease in search of a cure

The Mastocytosis Society is a 501(c)(3) non-profit organization dedicated to helping patients, caregivers and health care professionals understand mast cell disorders — what they are, where to get treatment for them, and the impact they have on patient’s lives.

NEWS

Minnesota Site for 2008 TMS Conference

Hilton Minneapolis/Bloomington Hotel

(May 8, 2008) Planning is proceeding for this year's TMS Annual Conference, which will be held Thursday, October 16, through Sunday, October 19, 2008, at the Hilton Minneapolis/ Bloomington Hotel, which is located at 3900 American Boulevard in West Bloomington, Minnesota 55437. More

Novartis trial for PKC412

Novartis logo

(April 23, 2008) We received a call today from Leslie Fields, the Patient Advocate from Novartis, who is working to coordinate the opening of the study for PKC412 (Midostaurin), a new drug for aggressive mastocytosis. We have some details, although not all of them, but we wanted to share what we know for those of you who are anxiously waiting for information. More

TMS Partners with American Medical ID

American Medical ID logo

(April 4, 2008) It is with great pleasure that we announce a partnership between American Medical ID and The Mastocytosis Society. At the Annual Conference in Houston, Texas, American Medical ID was generous in supplying attendees with free USB flash drives on which to store their medical records. These flash drives can be attached to a key chain or carried in a purse or pocket. More


FEATURED LINKS

» Dr. Cem Akin Named Top Doc — More

» New Disability Committee Forms — More

» Seeking Children with Austism — More

» Support TMS: Become a Member! — More


Mastocytosis and Mast Cell Activation Disorders Defined

Research

  • Stay up-to-date on the latest mast cell-related research.

Find Other Patients & Caregivers

SUPPORT GROUP MEETINGS

North Central : Saturday, May 17, 2008

Find a Support Group...


BOARD NEWS

AAAAI Mast Cell Task Force Meets

American Academy of Allergy Asthma and Immunology logo

(April 23, 2008) I was honored to be the TMS representative to the Task Force Meeting on Mast Cell Disorders at the American Academy of Allergy, Asthma and Immunology Meeting in Philadelphia, Pennsylvania, on Saturday, March 15, 2008. More

Seeking 2008 TMS Nominations

TMS Election Time 2008 banner

(March 29, 2008) It is with great excitement that TMS once again has a Nominating Committee in place. For the 2008 election year there are two positions to be filled and always a need for more help in our work.

Please contact anyone on the Nominating Committee by June 1, 2008, if you wish to have your name placed on the ballot for the upcoming elections.

Our Nominating Committee will be looking for those who have both an orientation towards teamwork and leadership skills. One needs to be willing to embrace change, work through our visions and goals, and adhere to our TMS Mission Statement and TMS bylaws. We look forward to hearing from you. More


GIOVANNI LAMANNA CD

Photograph of Giovanni Lamanna, songwriter and performer, and his mother, Michelle, who has mastocytosis. You can buy a copy of Giovanni’s tribute to his Mom and everybody with mast cell diseases through E-bay or from TMS!

Learn More about The Mastocytosis Society


© 2006–2008 The Mastocytosis Society, Inc.
Page last updated: May 9, 2008