The Mastocytosis Society

Emergency Protocols (below) Clinical Trials (below)


	What is Mastocytosis?

	Mast cells are something that are produced naturally in every body, necessary to assist the body in fighting possible foreign threats to the system. (more about masto...)

	Pediatric Fact Sheet [PDF]

	Mastocytosis Questions & Answers [PDF]

TMS News

Check out new items in the TMS store, including our new Together with Hope holiday cards and bookmarks (more)

(select images to view larger)

$15.00 (set of 10 + S/H)

Inside: Together with Hope

$5.00 (set of 5 + S/H)

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to get involved!

TMS Member, Lisa Sterling wrote a children's book, the proceeds of which, will go to benefit The Mastocytosis Society. (more)

One of the speakers at the TMS conference made a comment that requires clarification. Please click here to read a letter from our Chair, Valerie M. Slee, and our physician specialists clarifiying that issue. Thank you. [PDF]

During the physicians panel at the conference, the physicians in attendance agreed that all patients of mastocytosis or mast cell related diseases should get annual flu shots as should anyone with a chronic disease.

The physicians in attendance also agreed that mast cell related patients should not be blood or organ donors due to the fact that this disease originates in the blood and it is unknown whether the disease could pass to the person receiving the blood transfusion.

The 2010 TMS conference will be in Tucson (more)


	Support Groups

	find a support group in your area (more) find a support meeting (more) form a support group in your area (more) check-out our new support groups calendar (more)


	Medical Alert Information

	Check out these sites and services: Free Emergency Medical ID Wallet Card [Web], American Medical ID [Web], Identify Yourself - Universal Medical ID [Web], Lifeline [Web], MedicAlert® [Web], MedicTag (USB) [Web], Free Online Medical Registry [Web], Rescue Alert [Web]


	Help Wanted

	TMS Video on Mast Cell Activation Symptomatology TMS is actively seeking funding to translate the TMS video on MAst Cell activation Symptomatology into Spanish. Dr. Mariana Castells has asked that we translate the video as soon as possible. to that end, we have begun meeting with a translator, and asking for proposals for the project. We will be seeking grant funding to translate this, and other critical TMS literature for patients, caregivers and physicians, into Spanish. If you would like to contribute specifically to this endeavor, please send a check to "The Mastocytosis Society" and designate that it is for Spanish translation. In the future, we may be seeking funding to translate the DVD into other languages. Valerie M. Slee


	Emergency & Surgery Protocols

	Important information about anesthesia [PDF] Dr. Castells Emergency Plan for Systemic Mastocytosis, Mast Cell Activation, and Anaphylaxis [PDF]


	Clinical Trials

	Clinical Trials for Mastocytosis at MD Anderson Cancer Center in Houston, Texas. [PDF]


	In the Media

	Boy with a rare disease on a mission.... (more)

	“I think it is very likely that this patient has systemic mastocytosis — I can not think of anything else that would account for this unusual presentation,” .... (more)