 |
|
|
Please participate in the survey: "Coping with Mast Cell Disorders"
by Janice M. Chiappone, Ph.D. & Jennifer Nicoloro, MSW, LCSW [link] |
| |
| Emergency Protocols (below) Clinical Trials (below) Volunteer for TMS (below) |
| |
|
|
|
|
|
What is Mastocytosis? |
| |
|
| |
Mast cells are something that are produced naturally in every body, necessary to assist the body in fighting possible foreign threats to the system. (more about masto...) [PDF] |
| |
|
| |
Pediatric Fact Sheet [PDF] |
| |
|
| |
Mastocytosis Questions & Answers [PDF] |
| |
|
| |
|
|
|
|
|
TMS 2010 Annual Conference |
| |
|
| |
The 2010 TMS conference will be in Tucson, Arizona at the Sheraton Tucson Hotel & Suites, October 21-24, 2010. Make your reservations now! (more) |
| |
|
| |
|
|
|
|
TMS News |
| |
|
| |
ATTENTION DOCTORS AND RESEARCHERS: The Mastocytosis Society (TMS) is pleased to announce that we are accepting proposals for research grants for new or ongoing projects related to Mastocytosis or Mast Cell related disorders/diseases. Download the request for proposal. (PDF) |
| |
|
| |
May 2010: Volunteer Spotlight (more)
|
| |
|
| |
Patient Survey on Mastocytosis and Mast Cell Disorders |
| |
"a unique opportunity for mast cell disorder patients to provide input into the establishment or revision of diagnostic criteria for mastocytosis and mast cell activation disorders." THANK YOU TO ALL WHO PARTICIPATED.
|
| |
|
| |
Check us out on Facebook, Twitter and now YouTube!
The "Mast Cell Activation Symptomatology" video is now available on YouTube. (more)
The YouTube video has already had over 100 views! Share the link with your family and friends and especially show the video to your doctors. Let's make this video the MOST WATCHED VIDEO on YouTube!
|
| |
|
| |
Support The Mastocytosis Society online! You can support TMS by downloading a Causes Toolbar and using it to search the Web and make online purchases. You can also find TMS on Facebook and make donations at www.causes.com/tmsforacure. Many people have joined the cause and donate their birthday to the cause. Many thanks to all those who have donated their birthday this year. Find out more at the links above.
|
| |
|
| |
TMS Member, Lisa Sterling wrote a children's book, the proceeds of which, will go to benefit The Mastocytosis Society. (more)
|
| |
|
| |
One of the speakers at the TMS conference made a comment that requires clarification. Please click here to read a letter from our Chair, Valerie M. Slee, and our physician specialists clarifiying that issue. Thank you. [PDF]
|
| |
|
| |
During the physicians panel at the conference, the physicians in attendance agreed that all patients of mastocytosis or mast cell related diseases should get annual flu shots as should anyone with a chronic disease. |
| |
|
| |
The physicians in attendance also agreed that mast cell related patients should not be blood or organ donors due to the fact that this disease originates in the blood and it is unknown whether the disease could pass to the person receiving the blood transfusion.
|
| |
|
| |
|
|
|
|
In the Media |
| |
|
| |
"...Dr. Mariana Castells, an allergist at Harvard Medical School ..." (more) |
| |
|
| |
Autism is five to seven times higher in patients with a rare disease called mastocytosis .... (more) |
| |
|
| |
Boy with a rare disease on a mission.... (more) |
| |
|
| |
“I think it is very likely that this patient has systemic mastocytosis — I can not think of anything else that would account for this unusual presentation,” .... (more) |
| |
|
| |
|
|
|
|
|
|
Send Grads & Dads Flowers |
| |
|
| |
Send flowers and help TMS. (more) |
| |
|
| |
|
|
|
|
Tell Us Your Story |
| |
|
| |
Do you like to write? Do you have an article pertaining to the Masto Community that you would like to share with readers of the Chronicles? (more) |
| |
|
| |
|
|
|
|
The NEW Mastocytosis Chronicles |
| |
|
| |
Check out the NEW LOOK of The Mastocytosis Chronicles. (more) |
| |
|
| |
TMS Team at the American Academy of Allergy, Asthma, and Immunology Meeting
[Chronicles Article] |
| |
|
| |
Ironman Neal Victor Named Second-place Fundraiser in 2009 Janus Charity Challenge
[Chronicles Article] |
| |
|
| |
|
|
|
|
Support Groups |
| |
|
| |
- find a support group in your area (more)
- find a support meeting (more)
- form a support group in your area (more)
- check-out our new support groups
calendar
(more)
- check-out our new online support groups (more)
|
| |
|
| |
Upcoming support group meetings (more) |
| |
|
| |
|
|
|
|
Medical Alert Information |
| |
|
| |
Check out these sites and services:
Free Emergency Medical ID Wallet Card [Web], American Medical ID [Web], Identify Yourself - Universal Medical ID [Web], Lifeline [Web], MedicAlert® [Web], MedicTag (USB) [Web], Free Online Medical Registry [Web], Rescue Alert [Web] |
| |
|
| |
|
|
|
|
Emergency & Surgery Protocols |
| |
|
| |
Important information about anesthesia [PDF]
Dr. Castells Emergency Plan for Systemic Mastocytosis, Mast Cell Activation, and Anaphylaxis [PDF]
Patient Emergency Medical Information Sheet
[PDF] |
| |
|
| |
|
|
|
|
Clinical Trials |
| |
|
| |
Clinical Trials for Mastocytosis at MD Anderson Cancer Center in Houston, Texas. [PDF] |
| |
|
| |
|
|
|
|
Volunteer for TMS |
| |
|
| |
The Mastocytosis Society is in need of volunteers to complete the necessary work on behalf of patients and caregivers, worldwide. Please consider volunteering your time and talents to the organization. (more) |
| |
|
| |
|
|
| |
|
|
